Close-up of zebra stripes in black and white.

LAUNCHING IN LATE 2026

Black and white poster with the words 'SEE' and 'RARE' in large bold letters and the word 'SHARE' in smaller letters below, with the letter 'A' stylized as a sharing arrow.

A Global Rare Disease Campaign & Research Fund

LAUNCHING SOON

A Global Campaign to Make Rare Disease Visible, Fundable, and Solvable.

A group of zebras in the wild, black and white photograph showing their striped patterns and heads.

SEE RARE

See Rare is a global campaign to elevate the voices, science, and solutions behind the 400 million people living with a rare disease. We believe you can't cure what you can't see, and that visibility is the first step toward breakthrough.

Through powerful partnerships, bold cultural moments, and an innovative funding model, See Rare turns attention into action. Every story shared brings rare disease from the margins to the mainstream. Every dollar raised fuels the Rare Fund for Research and Innovation.

When the world can see rare, the world can solve rare.

THE MOMENT IS NOW

10,000+

NUMBER OF RARE DISEASES

30M

RARE PATIENTS IN U.S.

400M

RARE PATIENTS wORLDWIDE

95%

hAVE NO TREATMENT

50%

RARE PATIENTS ARE CHILDREN

Black and white photograph of two zebras with their heads close together, showing their striped patterns and ears.

Why Rare. Why Now.

Rare disease is the most overlooked health crisis of our time, affecting more people than cancer and HIV/AIDS combined, yet 95% of those afflicted have no treatment.

For decades, families have been told that nothing could be done. But today, science tells a different story. Advances in genomics, data sharing, and platform therapies mean we now know how to treat, and in some cases cure, many rare diseases. The barrier is no longer a scientific possibility, it’s the lack of funding, infrastructure, and coordination to deliver on that potential.

For rare families, every day matters.